"Our family was forever changed when Lacey was diagnosed with RSD at the age of 10.
Lacey's diagnosis was unnecessarily delayed because of ignorance.
Webster’s defines ignorance as a lack of knowledge; uninformed; and unaware.
We have witnessed other families today benefit from timely diagnosis and
treatment because of the information made available through the efforts of the Foundation.
There are still too many unanswered questions and there is only one way
to get answers.
RSD must be recognized, researched & understood.
It is our hope to make a difference in the lives of other children struck by this dreadful disease."
- Will, Patti and Annie Booth
In honor of Lacey Booth
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